Monday, July 27, 2009

thank you.

I have been reading and rereading the incredibly kind comments from my last posting. I have been so skeptical of the Internet as a social platform because I feel that people so often underestimate the public nature of everything from blogs to facebook and run the risk of sharing too much. With that said, I think I'm slowly starting to feel that the the pitfalls of sharing too much are actually outweighed by the benefits of having a wider network than one would otherwise have....
For example, I came across a couple of online support group/message boards for people with pituitary tumors(!) I casually perused the message board and came across someone who had many of the same symptoms as I did.... I decided to email her and we've been exchanging emails back and forth-- turns out she is about my age and a public school teacher in Brooklyn. It's been really nice to email with someone (even a stranger!) who is going through the same thing right now. I actually emailed her the list of questions I made and brought to my surgeon/endocrinologist so she could bring it along to her appointment and we've been exchanging info on the various NYC doctors.
... and while I hesitated to post anything about this on my blog, I'm happy that I did. Selfishly because I really do read through the comments when I'm feeling discouraged or down-- but also because maybe months or years from now someone will be newly diagnosed with this and looking for information or advice or a sympathetic ear....
With that in mind, I will continue to post about this pituitary tumor thing until it's (hopefully) resolved... but I wanted to say a sincere, heartfelt thank you to everyone that has left a comment-- it really has raised my spirits and bolstered my strength.
xoxo
Julia

2 comments:

  1. Julia: I continue to keep you in my thoughts and prayers. As always, you show such grace and strength in your emails. Your positive attitude is amazing. You are such an inspiration to all of us. I believe that how we tackle any issue has a direct impact on the result. That being said, I am very confident in the upcoming weeks for you! -Cindy

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  2. Julia,
    I hope you 'feel' the big collective hug that I felt going out to you when reading all of your comments. I am thinking of you daily and sending prayers...
    joan

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