I have been reading and rereading the incredibly kind comments from my last posting. I have been so skeptical of the Internet as a social platform because I feel that people so often underestimate the public nature of everything from blogs to facebook and run the risk of sharing too much. With that said, I think I'm slowly starting to feel that the the pitfalls of sharing too much are actually outweighed by the benefits of having a wider network than one would otherwise have....
For example, I came across a couple of online support group/message boards for people with pituitary tumors(!) I casually perused the message board and came across someone who had many of the same symptoms as I did.... I decided to email her and we've been exchanging emails back and forth-- turns out she is about my age and a public school teacher in Brooklyn. It's been really nice to email with someone (even a stranger!) who is going through the same thing right now. I actually emailed her the list of questions I made and brought to my surgeon/endocrinologist so she could bring it along to her appointment and we've been exchanging info on the various NYC doctors.
... and while I hesitated to post anything about this on my blog, I'm happy that I did. Selfishly because I really do read through the comments when I'm feeling discouraged or down-- but also because maybe months or years from now someone will be newly diagnosed with this and looking for information or advice or a sympathetic ear....
With that in mind, I will continue to post about this pituitary tumor thing until it's (hopefully) resolved... but I wanted to say a sincere, heartfelt thank you to everyone that has left a comment-- it really has raised my spirits and bolstered my strength.
PART TWO - PIPPA’S FLOWERS!!!
2 days ago